A recent study estimates that 89-97% of autistic people over 60 are undiagnosed, prompting experts to label them a 'neglected generation.' Dr. Louise Rutter, who co-authored a report for the British Psychological Society, highlights the lack of support for this group. For adult children caring for older parents, recognizing traits of autism or ADHD can be challenging.
Late-Life Challenges
Retirement and aging can disrupt routines that help autistic individuals cope. Dr. Rutter notes that 'losses and changes, transitions, changing health, moving into care, cognitive difficulties, bereavement' can destabilize them. For those with ADHD, the loss of dopamine from retirement may lead to depression, says clinical psychologist Dr. Neil Drew.
What to Look For
Experts emphasize that traits become problematic when they cause significant distress. Dr. Gavin Stewart from King's College London says, 'It’s not just about them liking to go and buy a newspaper every morning; it’s more that if that shop closes, it causes a lot of distress.' Dr. Emilie Moorhead adds, 'Do they find it really hard to manage social situations? Are there difficulties around communication?' Traits may worsen with age, as Dr. Georgia Pavlopoulou explains: 'Their nervous system has worked incredibly hard for decades, and now there is potentially less capacity to mask.'
Should You Seek a Diagnosis?
Experts largely encourage diagnosis, even for those in their 80s. Dr. Rutter says, 'An autism diagnosis triggers a process of reflection across the lifespan.' Dr. Moorhead agrees: 'Getting a diagnosis can be really helpful in making sense of things.' Dr. Drew adds, 'They may still have decades to live' more authentically.
How to Broach the Subject
Opening a conversation can be difficult. Dr. Drew suggests drip-feeding information, like saying, 'You said you really struggle with loud noises – these Loop earplugs might help.' Dr. Stewart recommends discussing neurodivergent celebrities to dispel myths.
Consider Previous Diagnoses
Dr. Moorhead notes that 70-80% of autistic people have at least one coexisting mental health condition. ADHD symptoms like forgetfulness and brain fog can be mistaken for early dementia. These should be discussed with a doctor.
The Family Ripple Effect
Diagnosis can help families understand long-established patterns. Dr. Sue Smith of the National Autistic Society says, 'Being able to see that in a different way can be really therapeutic.' However, Dr. Stewart warns that what works for a child may not work for an older person.
Finding a Pathway
Start with a GP, but private providers may be faster. Dr. Lisa Williams advises looking for face-to-face assessments and clinicians regulated by the Health and Care Professions Council or General Medical Council.
Physical Benefits
Diagnosis can improve physical health. Dr. Pavlopoulou notes that neurodivergent people are prone to conditions like high blood pressure and heart disease due to chronic stress from masking. ADHD medication may also reduce accident risk.
Don’t Wait to Adapt
Support can begin without a diagnosis. Dr. Pavlopoulou suggests focusing on routines, clear communication, and sensory protection. Dr. Smith advocates for peer support groups involving other neurodivergent people.
Lean Into Hobbies and Special Interests
Retirement offers freedom to unmask. Dr. Pavlopoulou says, 'Some people take an opportunity to unmask and connect with their special interests with no guilt.' Dr. Moorhead adds, 'Neurodiversity is as much about the things that people can contribute.'
